“SBWIS is excited to welcome Virginia Zignego as our new Executive Director as of February 2025. Virginia is looking forward facilitating the SBWIS mission.”
Resources. Peer Support. Social Events. Awareness. Changing lives!
Spina Bifida Wisconsin, Ltd (SBWIS) is a charitable organization with 501(c)(3) tax-exempt status EIN 39-1594831. SBWIS operates independently from other national or state Spina Bifida organizations. SBWIS membership includes infants, children and adults with Spina Bifida. We also welcome parents, guardians, family, friends, healthcare providers, and other supporters to subscribe and join. Since 1995, SBWIS has been dedicated to helping families impacted by Spina Bifida.
Spina Bifida Wisconsin, Ltd is committed to our mission – to enhance the lives of Wisconsin’s families affected by Spina Bifida by providing resources, peer support and social events in our community. We strive to raise other’s awareness about the unique needs of people with Spina Bifida. We are ambassadors, peers and educators changing the lives of those we serve.
We are a Wisconsin 501(c)(3) charitable organization exclusively serving the spina bifida community. You can verify our status by clicking HERE select Charitable Organizations and enter our name to search.
We are 537 members strong!
Current News:
Join us for Danny’s Golf Outing benefitting SBWIS on Thursday, June 5th. Click HERE for more information; we look forward to seeing you!
A HUGE thank you to Dr. Scholl Foundation for a very generous contribution to support our Footwear Fund. Due to their donation, we can now reimburse $75.00 / calendar year to our members over 2 years old.
SBWIS WISHES TO Thank these donors:
Dr. Scholl Foundation for a grant restricted to benefitting our members through our footwear fund; allowing SBWIS to increase reimbursement to $75.00 per year.
Enterprise Mobility Foundation for their very generous grant to fund SBWIS operational expenses and our 2025 Life Could Be Better Fund!
Our community hosting FACEBOOK FUNDRAISERS / NETWORK FOR GOOD.
Ongoing generous donations from Benevity Community Giving, U.S. Bank Employee Giving Campaign, YourCause LLC Trustee for Thrivent Financial, Ameriprise Financial, Inc. Advocate Aurora Healthcare and Rockwell Automation.
Lives changed in 2025:
2 New members with Spina Bifida joined
11 Members joined our community social and virtual events and benefitted from peer support
6 Camperships have been granted
6 Footwear Fund recipients
6 Toddlers on the Move
14 Adult Independence Fund recipients
18 Family Fund recipients
23 Adaptive Recreation Fund recipients
0 Mary Ann Potts Scholarship Fund recipient
5 of our members have benefited from the generosity of the Milwaukee Brewers Community Foundation program, along with their families and friends.
In 2024 SBWIS distributed a record amount of $45,150.00 in financial assistance directly to our members. We are changing the lives of those we serve!
